White Rose University Consortium logo
University of Leeds logo University of Sheffield logo York University logo

Exploring Autism Spectrum Disorders: Parental Experiences of Diagnosis and the Behavioural Heterogeneity within the Spectrum

Gallagher, Jen (2013) Exploring Autism Spectrum Disorders: Parental Experiences of Diagnosis and the Behavioural Heterogeneity within the Spectrum. DClinPsy thesis, University of Sheffield.

[img] Text
Revised whole thesis.docx
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (15Mb)
[img]
Preview
Image
image34.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (623Kb) | Preview
[img]
Preview
Image
image58.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (805Kb) | Preview
[img]
Preview
Image
image17.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (175Kb) | Preview
[img]
Preview
Image
image13.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (416Kb) | Preview
[img]
Preview
Image
image49.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (142Kb) | Preview
[img]
Preview
Image
image26.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (215Kb) | Preview
[img]
Preview
Image
image44.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (146Kb) | Preview
[img]
Preview
Image
image10.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (47Kb) | Preview
[img]
Preview
Image
image3.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (21Kb) | Preview
[img]
Preview
Image
image28.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (172Kb) | Preview
[img]
Preview
Image
image31.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (169Kb) | Preview
[img]
Preview
Image
image37.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (160Kb) | Preview
[img]
Preview
Image
image39.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (536Kb) | Preview
[img]
Preview
Image
image1.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (24Kb) | Preview
[img]
Preview
Image
image42.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (576Kb) | Preview
[img]
Preview
Image
image55.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (121Kb) | Preview
[img]
Preview
Image
image16.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (189Kb) | Preview
[img]
Preview
Image
image25.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (135Kb) | Preview
[img]
Preview
Image
image50.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (158Kb) | Preview
[img]
Preview
Image
image9.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (18Kb) | Preview
[img]
Preview
Image
image18.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (163Kb) | Preview
[img]
Preview
Image
image21.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (223Kb) | Preview
[img]
Preview
Image
image48.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (161Kb) | Preview
[img]
Preview
Image
image2.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (20Kb) | Preview
[img]
Preview
Image
image32.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (124Kb) | Preview
[img]
Preview
Image
image41.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (528Kb) | Preview
[img]
Preview
Image
image52.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (168Kb) | Preview
[img]
Preview
Image
image23.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (166Kb) | Preview
[img]
Preview
Image
image33.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (721Kb) | Preview
[img]
Preview
Image
image8.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (23Kb) | Preview
[img]
Preview
Image
image57.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (699Kb) | Preview
[img]
Preview
Image
image40.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (527Kb) | Preview
[img]
Preview
Image
image12.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (279Kb) | Preview
[img]
Preview
Image
image43.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (130Kb) | Preview
[img]
Preview
Image
image7.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (18Kb) | Preview
[img]
Preview
Image
image59.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (573Kb) | Preview
[img]
Preview
Image
image45.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (156Kb) | Preview
[img]
Preview
Image
image6.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (14Kb) | Preview
[img]
Preview
Image
image46.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (155Kb) | Preview
[img]
Preview
Image
image47.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (163Kb) | Preview
[img]
Preview
Image
image30.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (176Kb) | Preview
[img]
Preview
Image
image14.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (189Kb) | Preview
[img]
Preview
Image
image29.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (188Kb) | Preview
[img]
Preview
Image
image15.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (191Kb) | Preview
[img]
Preview
Image
image22.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (225Kb) | Preview
[img]
Preview
Image
image53.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (192Kb) | Preview
[img]
Preview
Image
image27.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (203Kb) | Preview
[img]
Preview
Image
image4.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (20Kb) | Preview
[img]
Preview
Image
image5.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (15Kb) | Preview
[img]
Preview
Image
image11.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (27Kb) | Preview
[img]
Preview
Image
image54.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (184Kb) | Preview
[img]
Preview
Image
image24.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (187Kb) | Preview
[img]
Preview
Image
image38.jpeg
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (581Kb) | Preview
[img]
Preview
Image
image51.png
Available under License Creative Commons Attribution-Noncommercial-No Derivative Works 2.0 UK: England & Wales.

Download (139Kb) | Preview

Abstract

This thesis contains a systematic literature review, and an exploratory research study. Studies exploring how parents had experienced the process of seeking an autism spectrum disorder (ASD) diagnosis for their child were reviewed (N=28). These indicated that many parents have dissatisfying experiences due to delays, disrespectful interactions with professionals, and a paucity of information. There are issues surrounding clear clinical pathways and communication between services which cause delays in diagnosis and accessing subsequent services. The research study explored the heterogeneity of behavioural presentations in ASD. Participants were 42 children aged 5 to 17 (25 with ASD and 17 typically developing). Participants contributed demographic, behavioural, cognitive, and neurological data which were explored through cluster and descriptive statistical analyses. The three emergent clusters were strongly influenced by cognitive ability, but also demonstrated a continuum of behavioural presentations and physical and developmental health, with one cluster representing a typically developing group, one representing high-functioning ASD, and one representing low functioning ASD. In contrast to previous research, there were no associations with alpha frontal power recorded with EEG. The social subtypes of ASD identified by Wing and Gould (1979) were strongly correlated with cognitive ability and severity of symptoms. Overall this research indicates the need to continue improving the diagnosis of ASD. The heterogeneity in symptoms of ASD could be one reason why the diagnostic process is long and complex, and should be explored further. Future research should consider cognitive and behavioural

Item Type: Thesis (DClinPsy)
Academic Units: The University of Sheffield > Faculty of Science (Sheffield) > Psychology (Sheffield)
Identification Number/EthosID: uk.bl.ethos.581739
Depositing User: Dr Jen Gallagher
Date Deposited: 05 Nov 2013 15:37
Last Modified: 03 Oct 2016 10:46
URI: http://etheses.whiterose.ac.uk/id/eprint/4648

You do not need to contact us to get a copy of this thesis. Please use the 'Download' link(s) above to get a copy.
You can contact us about this thesis. If you need to make a general enquiry, please see the Contact us page.

Actions (repository staff only: login required)