Clemerson, Gemma (2010) Towards living well with dementia: an exploration of coping from the perspective of those diagnosed. DClinPsy thesis, University of Sheffield.
Temporary Embargo (access restricted until embargo expiry date) until July 2015.
This thesis consists of two sections. Section one is a review of the literature on coping with dementia. It presents and evaluates the existing research evidence on how individuals cope with: the general experience and symptoms of dementia; the impact of dementia on self; and memory loss. The findings suggest that individuals employ a variety of strategies to cope with their experience of dementia. These include self-protective and self-adjusting strategies and emotion-focused and problem-focused coping. Coping was identified as a dynamic process situated in an interpersonal framework. Gaps in methodological and conceptual understandings are highlighted and implications for clinical practice and further research are discussed. Section two is a qualitative research report exploring the experience of living with and adjusting to Alzheimer’s (AD) disease in younger life. Semi-structured interviews were conducted with eight participants under the age of 65 years with a diagnosis of AD. Interpretative Phenomenological Analysis (IPA) identified four super-ordinate themes: ‘disruption of the life cycle’, ‘identity’, ‘social orientation’ and ‘agency’. Participants felt too young to develop AD, which was typically associated with old age. AD was experienced as a threat to self, a loss of agency and a sense of disconnection from others. Coping emerged as a cyclical process of attempts aimed at counteracting the above experiences. Participants developed ways of managing self-identify, reconnecting with others, taking control and reviewing life. The findings are situated in the human development and life-cycle literature. Implications for research and clinical practice are discussed.
|Item Type:||Thesis (DClinPsy)|
|Keywords:||Dementia Coping IPA|
|Academic Units:||The University of Sheffield > Faculty of Science (Sheffield) > Psychology (Sheffield)|
|Depositing User:||Mrs Gemma Clemerson|
|Date Deposited:||24 Nov 2010 11:26|
|Last Modified:||08 Aug 2013 08:45|