When women with cystic fibrosis become mothers: Psychosocial impact and adjustments

With advances in CF care, motherhood is now a realistic option for many women with CF. Research has taken place exploring the impact of pregnancy and motherhood on physical health parameters, however, there is little research on the psychosocial impact of becoming a mother on women with CF. The importance of information on this issue has been noted by both patients and professionals. As a result, this study aimed to explore the psychosocial impact of becoming a mother on women with CF, and how they adjust to manage this. Eleven mothers with CF (mean age 30 years, FEV1 68%) were interviewed over the telephone, and the data subjected to a grounded theory analysis. Thirteen conceptual categories and 70 subcategories were developed into a coherent framework and represented as a theoretical formulation. This theory details three core categories related to each other through a central process. It highlights the significant and complex psychosocial impact becoming a mother has on with women with CF, and the processes utilised to adjust. Managing the dual demands of CF and motherhood was found to be difficult, particularly in the early stages. However, the experience was found to be manageable, becoming easier to cope with over time. However, the mothers’ own resilience, problem solving skills, and support systems were revealed to be of paramount importance in adjusting to motherhood. The theory developed in this study also details the potential adaptations to CF care that may be required when female patients have children. In coping with and adjusting to motherhood, participants discussed the importance of the support of their CF team. This support was noted to be of great importance during the planning and preparation phase, and upon having children. The theoretical formulation developed and the study findings are discussed in the context of the existing literature, and implications for clinical practice and future research are discussed.