Lived experience of mental health and neurodiversity in parenthood

Abstract Objectives Pregnancy is associated with a multitude of physiological and emotional changes that can be challenging for physical and mental health. There is limited literature investigating autistic women’s experiences. Emerging pregnancy research suggests that additional challenges for autistic women exist, including heightened sensory sensitivity barriers to communication and overwhelming birth experiences. This study aims to investigate autistic women’s experiences of pregnancy, specifically the connectedness to their child, sensory sensitivities, and support. Design and Methods A qualitative design: Interpretative Phenomenological Analysis was employed with eight autistic cisgender women who participated in semi-structured interviews. Results Three superordinate themes with eight subthemes were found; “reinterpretation of perinatal experiences after diagnosis”, “the ups and downs of connecting to their maternal identity” and “seeking support: need versus reality” Conclusions Autistic women have similar pregnancy experiences to non-autistic women, whilst experiencing additional barriers and challenges. Most participants experienced disconnection from reality during birth, which led to confusion and distress. Societal stigma and perceived judgement negatively impacted maternal identities. Heightened sensory sensitivity was common and could interfere with daily life. Consistent support was valued but rarely 75 experienced, all participants struggled to communicate their needs to professionals feeling uncared for, unheard and misunderstood. Practitioner Points • Findings highlighted the need for specific autism training for professionals in maternity services to support autistic women in communication and sensory needs. • Future research should consider exploring experiences of perinatal or maternal services to inform practice.