The patient experience of stem cell transplant and how survivor testimonies influence this: an interview study

Haematopoietic stem cell transplant (HSCT) is a treatment for some malignant conditions and is considered to be a demanding experience both physically and psychologically. This study aimed to explore (a) the experience of participants preparing for and undergoing a HSCT and (b) how they experienced viewing a film of survivor testimonies as part of this process. The survivor testimonies were designed to be used as a clinical intervention for people preparing for a HSCT. Seven participants were recruited and a multiple interview design was employed to explore their experience at three different stages of treatment. The interview data was analysed using Interpretative Phenomenological Analysis (IPA). The data cohered around a central theme of vulnerability, which changed over time, from being overwhelming, to being resisted, to being recalibrated. It emerged that the effect of the testimonies was overwhelmingly positive. Participants found the resource a hopeful and optimistic counterbalance to the fear and uncertainty they experienced being diagnosed with a life threatening condition and undergoing a potentially curative but also life threatening treatment procedure. The knowledge acquired from using a film as a stimulus in research interviews is discussed, along with the contribution to the existing literature on the experience of HSCT patients, the clinical implications of how the care of transplant patients can be improved and how the resource of survivor testimonies can be used to support patients going forward.