An exploration of the factors involved in lifestyle decisions in young people with cystic fibrosis using decision making vignettes, and the role of perceived risk in infection

This study explored the factors involved in lifestyle decision making in young people with Cystic Fibrosis, specifically the role of infection risk. Certain pathogens present a high risk of infection to people with Cystic Fibrosis, and can significantly affect their health. It is therefore important that people with the disease attempt to minimise the risk of contracting these infections. There was limited literature relating specifically to infection risk and decision making in this population. However, this study drew on decision making literature from other areas, with regard to engaging in risktaking behaviours. The study employed a vignette methodology, presenting a series of lifestyle situations to eight participants and asking them to think aloud whilst deciding whether to engage in the activity. This was followed by a brief interview. An interview was also conducted with a Consultant Microbiologist, offering a detailed understanding of the level of risk presented in each vignette. Thematic Analysis was used to interpret the results, highlighting a number of important themes. Participants frequently chose to engage in activities that would present an increased risk of infection. It was often important to find a balance between maintaining their health and engaging in a fulfilling life. However, at times, participants lacked an adequate understanding of the level of risk or the nature of the infections to make an informed decision. Implications for future research and clinical practice are discussed.